Day +38 and +39

Photos of the Day






I'm not quite sure why but yesterday I was so shattered that at 11.50pm I thought, hey, maybe I should go to bed at midnight for the first time in 7 weeks...so I did. And that's why there was no blog!

Sunday was a busy day. Derek, Stanley, Bernie and Chloe visited. Jesse was determined to visit the river so at 2pm, when they took him off his lines, he got in his wheelchair and we jumped in a taxi to the South Bank. The others followed in the car. It was such a beautiful, sunny day, it was packed and we had to work hard to find places where there weren't too many people. Jesse was rather grumpy a lot of the time, I think he was totally overwhelmed, but as you can see he really enjoyed it. We spent the evening working on our jigsaw (Derek and he got really stuck in) and by 8.30 Jesse was shattered and ready for bed. His eating went OK, he had two lots of mash but was sick after the second, his poo output is decreasing steadily...It was lovely to see Bernie (who hadn't forgotten me), Stan and Derek, and Chloe of course, who is our total star!

Jesse had me up at 7am as usual today and by 7.30 we were on our first walk of the day. We had ward round today and the doctors are much happier with him. They haven't found any evidence of GVHD in his bowel, so the only answer is to allow his immune system to strengthen, which will fight the adenovirus. We had a meeting with the dietitian this morning, Jesse and I had got 11 questions ready for her...things like "when can Jesse eat watermelon? dough balls? turkish delight? pringles? wotsits? quails eggs? tomato ketchup? can he have a diet plan? what can he eat today? when can he have a take away? when can he eat in a restaurant (outside)?etc" Luckily lots of the replies were "Yes, or soon". We were very satisfied with the answers and she came up with some really useful ideas and suggestions. So today Jesse skipped mash for lunch and had a few rice krispies with rice milk...he was in heaven.

This afternoon we went out again briefly to the Brunswick centre, then to Bloomsbury Square and finally we sat in the sun outside Starbucks on the corner of Great Ormond St and watched the world go by. We came back and worked on the 1000 piece puzzle (I think we'll do it tomorrow), and Jesse had rice noodles for tea. He loved them and the crisps he had been allowed too (only 3), but a bit later he was a bit sick. His stomach is so sensitive after weeks of not eating that we will have to be very careful.

Hello to all of you...
lots of love
Claudia
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