Day +33

Thank you for all your messages...I knew you were there really...I was just feeling a little lonely. I am aware we aren't being much fun at the moment. Jesse isn't really himself. His only topic of conversation is food. The foods on the wish list today are pista rolls (mini backlava) and lychees, as well as the ever present dough balls, pitta bread, peach buns and watermelon. He was also waxing lyrical about the delicious smell of dough...

All this said, we got through the day well. Jesse woke me at 6.30am (he went to sleep finally at 2am) saying "Wake up Mum, its 7.30!" He is very keen to learn the time at the moment and is doing pretty well, but still not perfect as you can see. I managed to renegotiate wake up time to 7am, half an hour later we were on our first walk to the lifts of the day! We manged five trips in all, the final one in the lift to the shop this evening.

Jesse is having his biopsy tomorrow. He will have a general. The plan is to do a gastroscopy and an colonoscopy. First they put a camera through his mouth and look and take 3 small biopsies into his stomach and a bit beyond. Then they do the same through the other end, this time going all around the bowel, taking 7 more bits for biopsy. Apparently the biopsies are painless and heal quickly, he may have a sore throat and feel bloated as they will fill him with air in order to make more space. Jesse isn't the slightest bit worried, except for the possibility he will have to have a canula. They have given him two massive doses of laxatives as bowel prep, nevertheless he just below 1 litre of poo so far, this makes me feel the underlying problem is settling. Please keep fingers crossed...

I am going to finish now as it has been a long day. Jesse has hardly slept and has been rather demanding. I just wanted you to know that on Wednesday 7 March at 9pm on Channel Five there will be "A child in a million". It is about a bone marrow transplant at GOSH, bizarrely I found out today that is filmed in our room, cubicle 1, on Fox Ward. It is about a boy about the same age as Jess, sadly the BMT doesn't work. His lungs are so bad they have to give him very light chemo and the bone marrow doesn't take. I don't know all the details. Rachel, our nurse today, said I shouldn't watch it (even though she told me about it) but I think I'll have to. I have no idea what the full circumstances are although she told me that he is still alive...

Sleep beckons, good night y'all,
Claudia
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