Day +300
All is still fine. Jesse has settled back home and is getting stronger every day. He is very happy, he wears his medals every day and has made a museum of fossils and old coins! He is eating well considering his limited choice and pooing fairly well. He has done some proper ones but we mainly get poos strangely reminiscent of a mild korma! Levels are OK and there's been no blood, so we'll try not to worry too much and keep our fingers crossed. His blood counts are fine again too, although we are still waiting for the lymphocytes to return. School in January is now out, so we'll have to aim for after half term or more likely after Easter.
We went to GOS for clinic yesterday; they were pleased with him. If he stays well we won't have to go back till after Christmas. Talking of which, the shop is very busy, but we are managing. I hope you are all well and getting ready, keep in touch and keep sending us positive thoughts,
lots of love
Claudia


7 Comments:
Sorry I haven't written for ages. It's hard to find the words, usually I just feel stunned at Jesse's bravery and everyone else's stamina. We all send you our love. Please tell Jesse that Rice Krispies have become impossible to find in France over the past few months - is it because they've been shipping them all over to Brighton? When he feels better, can he send some back to Lily and Rose please? Wishing you the best Christmas ever.
Being an obedient big sis/auntie n sending lottsa positive thoughts!
xxx
WE ARE TOUCHING WOOD...
WHAT A SUPERSTAR.
IT WAS GREAT TO HEAR YOUR VOICE & CATCH UP - THINKING OF YOU ALL THE TIME.
LOVE LOADS
SOPHIE & ALL XXX
Too much information about Korma-poo!!!
Keep up the good work - we're all thinking of you as always!
lots and lots of love,
Simon, Rachael and Mollie xxx
Did you get to go to the party at GOSH - looked for you!
Still kepping up with Jesse's progress through the blog. caroline did really well over Xmas. She was heartbroken but so brave. Stefan would be so proud of her as she did exactly as he would have wished. hope you all had a great Xmas and hope we will meet again in 2008. a bit late to thank you now but thanks so much for coming to Stefan's funeral. It meant so much to Caroline. Have a healthy and happy new year. Talk soon Angela (Dublin)
and a brilliant new year to all
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