Day +289

Yes, we're coming home on Sunday if all goes well. Jesse managed to top the scales at 18kg precisely this morning, this afternoon he had 15 dough balls! So the doctors had to let us go. Meds are all oral and TPN is off so they can check he can maintain his blood sugars and electrolytes. Both he and I have been quite grumpy today, I think that's just because we need to go home. It feels a bit daft staying here, but never mind. I don't feel we can complain, the children on this ward are so ill and at least we are getting out of here. I have been so touched by the beautiful children who have so much to put with, little Ella only 4 months old diagnosed with leukaemia last week, Gus, 4, Bethany, 3, and Kenzie only 4 weeks old, all very ill. The nurses are so lovely here, it has been inspirational to watch their dedication, care and love in action. It must be a tough job but they all say they wouldn't do anything else, although they also admit that it can be very tough and that recently they have had a lot of bad news about the kids they work with. You wouldn't know it though, there is so much laughter and joy all day and night long. I am so glad we ended up here! We can't thank them enough.

I may not write again for a bit, especially as all is well, because I have loads to catch up on at the shop and home. The shop has been very busy over the past couple of weeks; luckily Sara, Joanne, Susannah and Emily are built of tough stuff. They have been brilliant; covering for me as necessary and dealing with loads of stuff every day. I can't thank them enough. I think they are brilliant! And Lily has been in most days this week and has been a great help! Thank you so much to all of them!
Must go now as its late,
love
c
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