Day +285

Hello everyone,
As you have gathered things are improving rapidly, which always makes everything more hectic. I am going to do a brief medical round up as it is late and we have to be up early tomorrow. Yesterday a chest x-ray showed that Jesse's lungs were virtually normal. The fluid had gone and the right lung was much clearer. By listening the doctors can hear that it is now inflating. Jesse is eating loads, his poo levels are fine, there is no blood and now the antibiotics are being stopped the poo is firming!

Tomorrow morning Jesse is on the list for a Port-a-cath, this is another kind of central line to replace the Hickman line that became infected. The advantage of this line is that it doesn't need dressing, can be accessed easily and has less risk of infection. The disadvantage is that there is only single access (ie if he needs more than one iv treatment at a time he'll need a cannula too) as opposed to the double Hickman line. Before he goes to theatre, in order to check he's up to a general anaesthetic, he's having another echo done to check that his heart has recovered as well as his lungs. So we have a busy morning...

If all goes well we may be home on Friday or the latest Monday. The next hurdles are getting him off TPN, getting him eating enough and switching over all his meds to oral rather than IV.

I'll try to write tomorrow, keep all crossed for us,
love
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