Day +269

Hi Guys, things aren't too good here. Jesse hasn't been winning the pneumatosis battle, it has steadily been clearer that his bowel is in a bad way. The lovely, Joanne, Sara, Emily, Josie and Danny came over on Sunday afternoon for a cheese fondue and Jesse had a brilliant time playing hide and seek with Josie but at around 8pm he did a poo that was basically blood water. At that moment we knew we were losing so I suggested trying nil by mouth for 48 hours, Jesse agreed. 48 hours were up at 4pm today, he found today difficult but never complained. I don't know how he managed it...but this evening after breaking his fast with a small amount of boiled rice and rice Krispies, he did a large loose poo, full of blood. At this point we knew we were beaten. I rang the local hospital (the Alex) this morning to tell them of our situation. We knew it was very likely we would have to go in for a course of IV feeding (TPN) but were hoping that we could be in for 16 hours overnight and out and off TPN for 8 hours. No such chance, he will have to be in for 24 hours a day for at least 7 days and then we can be on a less strict regime. It may be that he can come home for a bit or full time then...I'll keep you posted. So we are going in tomorrow, wish us luck,
lots of love
Claudia
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