Day +175 We made it home today!
I'll keep this short (and bear in mind this post only makes sense if you read the previous one). The scope went well, although I found it very traumatic, he was given a medicine that meant he forgot everything, luckily it worked! He has no memory of telling the nurses to F*** off as they put the cannula in or trying to scratch and bite me!!! I was with him whole time and was able to see inside every nook and cranny of his gut and bowels, we have the photos to prove it!
His stomach looked pretty good, shiny and pink as it should except for some white nodular lumps (which could indicate food intolerance) but his bowel looked really quite wrong...most of it was white and furry (like an unhealthy tongue) and then very far up there were some red sore bits. The doctors weren't sure what all this meant (candida, GVHD or adenovirus) so we'll have to wait for the biopsy results(4-10 days). I'll keep you posted!
Ruth came over last night with an amazing M&S selection of goodies. Jesse and I really enjoyed seeing her.
We got home today via HMS Belfast, Jesse really wanted to see the anti-aircraft guns. Last time we went he was too weak to go up the steep steps so we had a great morning!
Must go as it's past Jesse's bedtime, I'll write again when I have more news...although having said all this...Jesse has eaten loads today; a whole sub roll, loads of chips, several lychees and and ice cream cone!
love
Claudia
x


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