Day +56

Yes, it has been eight long weeks since transplant and we have had yet more to deal with today. I was taken into a room for an hour and a half to have a meeting with Nick Goulden (cosultant) and Kanchen Rau (nearly consultant). They said the one thing I have been dreading all along, they want Jesse to go back to nil by mouth. I knew it was coming but am very pissed off because on Monday I asked Kanchen if I could increase fluids and food intake incase things might improve, having checked that doing so wouldn't cause any damage to the gut. She said that would be fine. But two days after his diarrhea went sky high they are now wanting to take it all away. Yesterday I had withdrawn cranberry juice as I think that was the culprit and his output went from 2.7 litres to 2 litres and is down again today. None of this washes with them, they say it should be no more than 0.5 litres. I won't go into the ins and outs of the meeting as there was a lot covered. I managed to put off the day till Monday (at the latest as the consultant said), as I am planning to go to Brighton for the day on Saturday and Sunday is a bad time to do anything in this hospital, it is so deserted it feels like a ghost town. I'm hoping his output may have reduced by then and so they'll think again. I know its a long shot but its worth a try. I am weaning him off some foods and restricting his input on the basis that it might help and if it doesn't at least it will have been a more gradual process and so not such a shock. I have told him about the possibility already and he isn't happy but at the same time he isn't as unhappy as I thought he would be. I'm not sure if I've mentioned this but we are buying a new house tomorrow. The old lady who we are buying off has lived there for 48 years so it needs a lot of care inside and out! Albie is going to help and we may have found builders but it is going to be very difficult while I am here. So I need to go back to Brighton to look at the new house and get a plan of action in place. Wonderful Tim was all set to look after Jesse on Saturday but he has a coldy thing that Zara and Eva have too so I don't think we should risk It. Lovley Red Ruth is prepared to have a go; it is very kind of her and I think Jesse will have a whale of a time!

That's all folks...bed time for me!
C
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