Day +9
Photo of the Day
As promised here is Bernie in a bag! I'm not sure Sainburys had this in mind when they came up with "Try something new today"...
What a day! Jesse has been very unwell today and still is. He is stable but has a very high temperature and as yet no one knows what is wrong. It could be a bacterial, viral or fungal infection or it could be Graft Versus Host Disease (GVHD), although they reckon its a bit too early for that. He has been floppy, sleepy at times, vomiting, had the runs and his oxygen levels are low. He has a rash on his thigh and is very flushed, he also said it hurt when he did a wee. They sent a mobile X-ray machine up to check his chest but thankfully it was clear. He is on 4 different IV antibiotics and oxygen. We'll have to wait and see how it develops and if the cultures grow anything. I know this is all to be expected but it has been very worrying as you can imagine. This is what he looks like tonight, he has two IV lines going in, a milk feed running, a monitor on his finger to check oxygen levels and oxygen. As I am writing this (2.30am on Sunday 11 Feb) Jesse has just been very sick. I didn't catch it all so he's just had his fourth change of bedding and his temperature has reached 40.4 (the tempadots don't go higher so it may be more).
Last night Jesse was very funny. He woke up at 2am in the middle of his 4 hour transfusion and was buzzing! At 3.20 I told him I was going to sleep, I've no idea when he fell asleep. At 7am I awoke to hear "Claudia, I need a wee, Claudia!" At 7.30 it was "Claudia, put on the TV, Claudia, there must be something on" and so it went on! Here he is at 2am this morning with his dogs Ragor (the black one, pronounced Ray-gar)and Toby. As you can see the dogs love Jesse very much!
Tim came and spent the afternoon and evening with us, which was lovely. Derek brought Bernie over and he had a great time in the play room. I don't feel like writing too much but I took a load of photos today, I hope you enjoy them! The one of Bernie walking is a bit blurred but at least you can see he really is walking!
love
C
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posted by Jesse Richards @ 00:06
7 Comments
7 Comments:
Darling Jesse, Claudia and Derek, This is the tough time you anticipated...it'll get better as Jesse gets better and stronger as his new cells kick in. We all send you our love and are thinking of you every day.
Ken and Rosalind
Lily and the boys are doing a fine job of keeping the house neat and tidy. It must be worrying for you all, and I hope Jesse who is such a brave little fighter gets really better soon. Lots of love to you all. Helen xxxxxxxxxxxxxxxxxxxxxxxx
Aw Jesse - you do look poorly but it's lovely to see that you have TWO more dogs that love you very much... may be you can add then to your love duvet.
As for the pics of Bernie in Sainsburies bag - I'm trying to think of a bag that you will fit in by the time you are outa hospital n have started to eat lots n lots ... maybe a huge flour sack - nah that wd leave you all white and dusty, may be a huge coal sack - nah that wd leave you all black and even dustier, may be you'd fit in a duvet cover!
Am keepint fingers, legs n toes crossed that you'll be feeling more better soon ( walking with crossed legs makes me look very funny and I'm getting some strange looks.)
love from us all
gaby
Dear Jesse,
I am thinking of you every day and hope by now you are feeling a little bit better. If there is anything I can do for you and your mum please let me know, and I hope to see you soon.
All my love,
Granny xxxx
Hello Jesse, Swans class is getting on fine. Two weeks ago we had our class assembly - it was all about Jamil's clever cat. We did a shadow puppet show. I would like to tell you a joke: What bird is always out of breath? A Puffin!!! Love Katie.
Jesse,
I am so sorry to hear that you are feeling ill! And it sounds like you are becoming nocturnal are you becoming half boy half bat?!!
You are so brave and im thinking of you all the time!
All my love to you all,
Leo xxxxxxx
Jesse my lovely, you won't believe what's happened, but Kipper, Kippeur and some of the puppies have been swinging through the air at the circus! I'm not sure how they got there, but do you remember how you let them hang on a rope out of your window one day? I think they must have been learning to do some great circus tricks. I think they must really enjoy being doggy super star acrobats. A photo is on its way to you!
Love Lily xxx
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