Day +5
Photo of the Day
Kipper knows how fond Jesse is of the Famous Five and has heard all about their adventures on Kirrin Island. For a long time he has been on about visiting Kirrin Castle, and a couple of days ago, while Jesse had a sleep, he made it! As usual he sent Stan a postcard, he looks like he is having a lovely time!
Jesse continues to do well. The consultant is very pleased with him. He still isn't eating, but they say that is completely normal. Today all he ate were 3 tiny individually wrapped Green & Black chocolates I spotted in Waitrose and thought he might fancy. He really enjoyed them but didn't want anymore. He has stopped drinking much too. The doctors have upped his anti sickness drugs (he is on 7 doses of 2 different kinds a day) and gave him a patch behind his ear which is supposed to help. They gave him a bolus (a sort of liquid solid feed through his PEG) for the first time today and he is on a special formula milk feed all through the night. This evening he was very sick again. I dread to think what it would be like without the anti sickness medicine!
But as usual he has been in very good spirits and his mouth is still fine and his bum is loads better. Every night I get his blood counts for the day, tonight there was just a line where the neutrophils and lymphocytes (white cells) are recorded. So as of today he has absolutely no immunity whatsoever against anything. He is now very vulnerable to any infection, so we have to keep washing our hands and crossing our fingers. On day +8 he will have GCSF, which boosts white cell production and we should see a little rise, a sign that his new marrow is responding. I'm really looking forward to that moment!
Chloe came from Oxford today and had Bernie for the afternoon. I think they have a very good time together! It was lovely because Derek and I were able to be with Jesse at the same time for a little while. Then I left the boys together for the afternoon and met up with Chloe and Bernie for a hot chocolate and a chat. Thanks again Chloe, you really are a star! So all in all it was a good day. Keep the jokes coming, they keep our spirits up!
love
C
x
PS Leo, I'll pass on your comments to Jesse tomorrow and let you know what he thinks.
posted by Jesse Richards @ 23:32
4 Comments
4 Comments:
Hy again
Hope you all had a good night.. n maybe you managed to eat a tiny little sumut Jesse. Being fed thru a tune sounds very space age - just think of all the cooking cooking and washing up we would be saved if that was the way we all ate. But then we woulkd't get to taste goodies like Turkish Delight and proper choccies, so maybe it's better to have to do the washing up. Ah if we just ate choccies n Turkish delight we wdn't have to wash up would we?
Have had a minor flareup so haven't been able to go snorkelling, but intend trying it today - I'll say helo to any pretty fish I see for you.
lots of love - how's that special duvet doing?
gaby
Hi Jesse,
It is good to read that you are doing very well !
My son Jules has a dog named Hooper, he really looks like keeper but unfortunatelly we lost him today in the street. I guess he was a bit jealous and wanted also to travel worldwide as yours. I would not be surprise to see both of them, in a few days at the top of the Eiffel Tower !
Let me know if any news...
Lots of love, we all keep our fingers crossed.
Sophie, Sylvain, Leo and Jules
Hi Jesse -
Good to hear you're doing so well!
I don't know all that many jokes, but Woody has left a couple of joke books lying around (he's So untidy..) and I've found a few you may like. If you know any of them already, blame Woody - he's such a slow reader I expect some of these may be old 'uns!
Anyway, here goes
What did the little porcupine say to the cactus? - Is that you, Mummy?
Why did the boy put lipstick on his head? - He wanted to make up his mind!
Why did the little boy tiptoe past the medecine cabinet? - Because he didn't want to wake the sleeping pills!
What d'you call a surgeon with 8 arms? _ Doctorpus!
What's invisible and smells of carrots? - A bunny fart! (This is Woody's favourite.)
....And on that note...I'd better get on with some work! Woody is at the groomers getting a big haircut today. It takes 4 hours! Poor Woody, having to stand there while somebody tries to get a comb through all the tangles in his fur. Actually, he's very brave and patient, but he HATES it when they have to get all the little bits of burr out of his beard as it's the most sensitive part of him!
But he knows that at the end of it he gets made an enormous fuss of, and of course that usually includes quite a few more treats than he's normally allowed.
Lots of love from
Charlie, Tom, Wilbur + WOODY
^^
**
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This is supposed to be Him ^!
hi Jesse, I've got a joke for you - Im hoping its gonna win joke of the day... here goes
Q: What do you call a rabbit with no ears?
A: Anything you like cos he cant hear you!
hehehehehehehehehe
Whadduthink?
lots of love, Wink xxxx
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