Day +20
Hi Folks,
This'll be short, am exhausted and its late. Difficult day but better than yesterday, less poo, less vomit. Jesse not puffy but very grumpy. Better in evening. Geneticist came in afternoon, possible diagnosis of WT syndrome, very rare and no test. Am sceptical as our family history doesn't tally, ie no previous cases. Could be me who is carrier so had blood film done. Geneticists coming tomorrow pm to do Derek's blood and look at Bernie. Bernie had cold, I didn't see him and Derek couldn't visit Jesse. Thank you all for everything!
Lots of love
Claudia
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posted by Jesse Richards @ 01:27
6 Comments
6 Comments:
Thanks for going on writing even in these exhausting circumstances.
Very much love from us all,
R, N, C, e xxXXxxxxxXx
We're with you! All our love.
Dear Claudia
hope everything is going to be better!!I am with you!
Lots of love
Arianna
You are amazing Claudia. It has to get better soon - hang in there!
All our love, John and Venetia
We are thinking of you, you are doing a fantastic job Claudia. Take care and love to you all. Helen xxxxxxxxxx
It feels so useless not being able to help you, Derek, and, of course, Jesse. We are thinking of you and praying for you every day. Jesse sounds so brave - a real hero, and that is all down to the support you and Derek are giving him. Well done.
Your family are a real credit to you.
Olivia, Simon and girls
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