Day +14

Photo of the Day
Jesse made it out today! We walked round to Coram's Fields (a little park round the corner from GOSH). He's got a funny expression because he is shouting at me to put the camera away! I found his cap in Baby Gap (the only kids shop locally), it was the only one that would fit him, as it was reduced to 99p I got it on the off chance. Luckily he loves it! He had just got very cold hence my scarf and coat. We were out for no more that 20 mins but it felt good...


Jesse's neutrophil count was 3.47 today! They halved his dose of GCSF today and tomorrow he has none. This will mean his counts will drop a bit, but should still be good. As you can see he made it out for a bit today. We had a window between 2 and 3pm with no IV and so we were off.

There hasn't been much to report other than Jesse has been quite sick today. I think it was brought on by the potassium supplement. They tried twice and each time he brought it back within a couple of minutes. It is supposed to be really horrible, apparently it fizzes as it goes in (through his PEG), so the third time they gave him a different kind which stayed down. He had one more episode in the evening but managed to drink quite a lot today (still nothing to eat except one fruit winder for breakfast).

He had a CT scan this morning which showed his lungs were clear. With all the activity today its not surprising that he slept twice in the day and was asleep early tonight.

Thank you for your limericks Dom, Annie and Andy. They are brilliant! I hope Dom continues to feel better! Thank you so much for having Stan (and Olly and Fred). They had a great time...you are very kind. We owe you one. And Cory, thank you for the Loch Ness Monster, its great! Love
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