Day +12

This one will be brief...yes, I know I've said that before, but this time I really mean it! Jesse is doing pretty well, although he was grumpy and uncomfortable today. Yesterday I didn't mention his bad reaction to the anti fungal drug Ambizone. I'm not sure why, I think because it was so horrible while it lasted and then when it was over I wanted to forget it. One of the side effects is bone pain and Jesse got it very badly. He was writhing all over his bed in agony, it really reminded me of someone in labour. The nurse gave him codeine and it settled quickly but today he had a similar (although not nearly so bad) pain with the GCSF. I think it felt a little like bad growing pains, at lunch time he was so exhausted by it he fell asleep, but was woken by the mobile ultrasound unit come to check that he had no fungal lesions within his body (they didn't find anything thank goodness!) The doctors took him off the Ambizone for the moment as they are pretty sure Jesse doesn't have a fungal infection, although they are still insisting on another CT scan later in the week.

Our really exciting piece of news is that Jesse's neutrophil count is up to 0.67! Two counts of 0.5+ in a row on a weekday means we are onto yellow! I'm almost certain that will happen tomorrow, Chloe was coming to help out with Bernie tomorrow anyway so it looks like she'll be Jesse's first other visitor! He can't wait to get to the playroom!

Tim came and stayed with Jesse this evening and so I took off to see Derek...we went out for a meal and Bernie came too! He had a whale of a time! It was such a treat to get out...
Must go...

Have just realised I fell asleep before publishing this post. It is now nearly 7am, Jesse woke me at 5am and then went back to sleep, then 6am. He had a carton of Capri Sun, and instantly brought it back up all over his bed. While I was changing his sheets he fell asleep. Not very helpful of him, and to cap it all the connection to his milk feed was leaking so I had to change his pjs too. Result? Jesse fast asleep in a crisp, clean bed...me wide awake finishing off the blog! Ho hum, that's the way it goes I guess. I am so excited about his count though I feel very happy. I'll put another post up at 10am when we get the results. Till then, tara,
love
Claudia